Just a little update.
Had transfusion of the "3" platelets, 2 units blood. Doing okay. Little blocked on left side but okay. All signed up with Hospice. Nice, helpful group of people. Totally bent on keeping you comfortable during you ending days. Don't know how many but we'll try to get as many good ones as we can. Doing some hours at home so keeping up with work, friends, co workers. Sometimes a little tiring, but nice to say good bye.One was perfect. Along the lines of "Just wanted to say I love you and enjoyed knowing you all these years".
The family (Mark, Gina, Ava) are coming up for a short visit in a week or so. Looking forward to seeing them. Don't know how long I'll have the energy, since this is all dependent upon the blood count. It sounds as though when the blood transfusion doesn't work any more (no energy or response), then it's just a matter of slipping away. (getting more tired until I just fall asleep and not wake up due to the low blood count. The oxygen level is about as high as it can get (mid-100), but the 'number' of cells decreases, bleeding due to low platelets, etc. Anyway, they will keep me as pain free as possible.
Jim is such a sweetie. Doing everything he can to help to keep me comfortable and putting up with all the malarkey I give him. We're trying a synthetic med so Jim doesn't have to get up in the middle of the night to give me another dose (it lasts 12 hours).
Nurse Katie will be coming for a blood draw and check up on the new medication reaction on Wednesday. I'll also have the home aide Julie stop by around 11am. Then later that afternoon/evening I'll find out results (pretty sure I'll have to do a transfusion) and go in Thurs or Fri for the blood transfusion. As long as everything keeps me going until after visiting with the kids I'll be content.
You'll get a kick out of this ... I keep trying to answer alarm clock (small travel one) for my cell phone, and the TV remote for the hands free phone.
Love to all
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6 comments:
We are pulling for you Sue! I was remembering our trip to Lewiston last week...good times! Kathleen came over Friday night and we had a drink...or two...or so...in your honor.
Missing you! And yes, my life is better for having you in it.
XOXO
Karen
Sue-
I guess it's time to say our goodbyes. I wish we had spent more time together, you and I. But we had some good times when the children were young and at home and I loved our circ wars between Spirit Lake and AThol, when we were there. The dinners we shared and the good blabs in the evening, I loved those too.
Josh said to tell you that you're good people, and that there is only one place for good people.
I want you to know that I love you dearly. You know, I can't remember a single time in our working days together that you didn't have a smile on your face or some quick little funny to share and that means the world to anyone who had the pleasure to be around you.
God bless you and keep you till we meet again.
-Clydene
Hi Sue,
Just wanted you to know how much I truly value your friendship. You have always been there for me whether it was answering a whole bunch of work questions or just listening when I needed a friend to talk to. Having you as a friend and colleague has been a blessing to me.
I am sending many thoughts, prayers, and hugs your way. Miss you.
Kari
Just wanted to say Hi! again and Thank you! for all your help for the computer-feeble-minded you've given me. You inspire me with your wit and "realness". I've enjoyed getting to know you more the last couple of years. I will remember your grace when my time comes. Life is only part of the whole picture, but you knew that.
Kathleen
Whoops! Last comment was Kathleen's. Still had old profile on blog. Think I fixed it. Smile, it looks good on you.
Kathleen
Hi Sue,
Kari gave me your blog address today at the CIN meeting. I will always remember you (and Jim) coming to Plummer to help me with our first Voyager upgrade. You have helped so many of us with our computer problems over the years, especially the Access stuff which was like learning a foreign language for some of us. Besides your remarkable "tech brain" wealth of knowledge & skills, your gift of patience, warm smile and caring attitude is a treasured memory. I'll pray for Comfort to ease your pain, Strength to do what you need to do as you are surrounded by love. You're truly an inspiration!
Paulina F.
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